All those who do Not know Already. Since 2021 I have been trying to raise money for A Health Issue that began since 2018 but NOW became a Chronic Painful problem since October 2020 in the High Point of Covid. My right breast started to change form and painful to the point I couldn't sleep and then started getting inflamed. So I went to the Carenage Health centra and an indian Woman Doctor checked me and instead of dealing with my Problem I got a lecture on Indian Woman Empowerment which got me angry as i was not there for that and my blood pressure was rising, so she literally looked at my breast and started writing and I had to ask her what is it an she screwed her face and said An Abcess. Gave me Augmentin Antibiotics for 5 days (weird) and I went on my very merry painful way. So my parents finally listened to me to go to Dr.Oliver Young Pong (our family doctor)in November and he said it was an Abcess and Incised drained it and gave me Painkillers (Traumcuet) and Antibiotics (Augmentin) for 7days. I was very satisfied then. Until a month later it came back and i had to go back and do the same in December (Boxing Day)he thought it was a sebeacuous cyst , until 2 weeks after in January 2021 it came back and this time i woke up and my entire Breast was killing me and I rushed back to him and he did an incinsion and pressed & squeezed out all the inflammation. Everytime I went on local anesthetic and got antibiotics. This continued till June 2021. He couldn't understand what was going on and was persuading me to go to a surgeon, which i did not want. But my mom called my Cousin who had breast cancer and beat it and she told me I need to go to St.James Breast Cancer Clinic.I did not want to go because it being Public Sector and Covid Restrictions. Eventually I went to see Professor Jameel Ali. Who is the Head of that department. I was very happy with him but when he screened me he found nothing. So he made me do another Ultra Sound and Mammogram for the 2nd time in. November. I went with my results in December 5 days before Christmas and I did feel a lump. He examined me and screened me but was very quiet. And of course I always want to see the monitor and he said my results are not matching what he saw - 2 masses. So he spoke to my Dad and myself and first thing he asked was if I had Health Insurance - I said NO and i knew it was not good. So he told me I need to do an MRI, blood tests and CT scan and gave me referral letters. I was not happy but more numb because the country was on lockdown and those tests ARE expensive. I asked if i could go to the gym he said yes but to wear a very supportive bra and breast pads.
I Spoke to my pyschiatrist and he told me try and write donation letters as I had referrals. I called the 3 doctors i went to before even a virtual Doctor in Miami and they said keep them posted.
well there are good ppl out there that contributed and then the usual people who don't know me saying I don't hava health problem and how EVERYTHING IS FREE IN ST.JAMES... ABSOLUTELY FALSE! I remember crying when I heard that and that was the only time I cried throughout this whole "adventure".
A Couple months after i raised money for bloodtests and the MRI (which btw i cried through the entire hour long) i went with my results in June and it showed clear. But in August i realized another hard lump and I started to panic. I called Professor Ali and he was out the country and he had another doctor seeing his patients , Dr.Olivier (never heard of him) and I was fedup. My mother harassed me to go so i said fine. I went back to St.James on my monthly excursions there and I saw Dr.Olivier who asked a bunch of questions and Diagnosed me as Periductual Masitis/Zuska's disease. So after 2 years of spending the little we had on private doctors and tests and writing letters for donations. I got a Diagnosis which requires surgery and reconstruction of my breast ( No breast implants thank you very much). I was prepared to do the surgery in October/beginning of November but the OR was booked till end of February. I went back 1st week December 2022 as the lump got bigger and I had to get it incised and the inflammation out and he decided to pack it instead of just putting a plaster on. It was horrible up to this day. My breasts have formed some other cysts and I was trying my best to work hard to pay for all the medication and further tests. Yet he didn't tell me this Zuskas Disease is very hard to treat, it ingrains in your body that it may be for life and I will have to constantly check on it that I will need my Pyschiatric care - Thank God I have Dr.Gerard Hutchinson (Pyschiatrist) Another Doctor Mark West (a Specialist in Respiratory system) who my mom and sister knew told me that 3 weeks before Carnival. So I was very upset. Dr. Olivier was so confident and he told me to read up on it and I report to all the Doctors I went to. Dr.Oliver Young-Pong said that is very rare and he has never had a patient with that and he looked up and nothing promising. Professor Jameel Ali advised me to go away because of all the incisions on my aerola, I have to have reconstructive surgery too. This is ALL too overwhelming and No Health insurance...just too much. My Father is Adamant "NOOO the Surgery is free in St.James."
My mother is absolutely angry and quarrels since I started complaining and now my Father is totally irrational when I thought he had patience he does NOT and no reasoning. We fight everyday and night and I am in Tears everyday and night. I cannot handle this. I work I paid most private medical bills and buy medication when I have to, but these tests and bills are adding up too much to survive, eat or just live!!! and my family is NOT helping. I have NO CLUE what is going on but I have to have a life and this is too much.
It has been 9months practically 10months(July/ August) and now I am required to do over the tests and I recently found out my parents have 2 loans paying. I went to private doctors as my breasts started up again as it started and I am feeling and seeing odd lumps and constantly getting inflammed and painful. I have been severeley Depressed for over 4months and as much as I have drive to work as I work freelance I could not and am struggling with all this - too many misdiagnosis, losing my biopsy in St.James and furthermore my parents and I are not getting along to the point of silence. I try talking to them but it ends up in fights and me in tears everyday. Today is Tuesday 25th July 2023. It seems I have no family support and I am doing my best to get out of this Depression from everything. It is too much for me.
I literally am forcing myself to start working because I have Nothing left, no will, Energy or effort. I feel like a Burden and just to give up.
While all the earlier tests was going on my father noticed my elbows changing colour - I just said it is my allergies and sinuses as my upper lip always gets swollen to certain medications. So we decided to go to Dermatologist Naomi Dolly and i spent $650 for 10mins of her time asking me questions and typing on her little ipad or whatever and she said I have Vitiliago (depigmintation of the skin colour) she said how i eat is probably how i have it under control and she prescribed 2 topical steriod creams to use twice daily, Ellidel and Dermovate which is approximately $400 every month.
Recently i noticed my knuckles on my hands fading in colour so i started to panic and research but now there is a cream called Opuzlena (spelt that wrong) that cures 75% of Vitiligo but i can only get it from a US dermatologist to prescribe for me in the US. So i researched and i can get 2 virtual appointments with a Dermatologist and my Uncle who lives in NY and buys all my allergy tablets etc. He can pick it up. This topical cream starts at $2000us. To be totally honest that is cheaper than paying for all the treatments.
So Again I AGAIN I AM DESPERATE FOR ANY FINANCIAL DONATION, for me to do the tests for my breasts and try to get a start on getting the medication for my Vitiigo.
I CANNOT BELIEVE I AM DEALING WITH THIS STILL. I have reference letters and everything as proof.
PLEASE DONATE SO I CAN GET MOVING BECAUSE IT SEEMS I AM DOING THIS ALONE AND I CANNOT HANDLE IT AND THE DYNAMICS OF IT ALL. I CAN ONLY THINK OF WORK AS I WORK FREELANCE.
All the Doctors i went to:
Carenage Health Centre - Foreign Female Doctor
Dr.Lenny Rounder (Miami)
Professor/Dr. Jameel Ali (Oncologist - St.James Head Oncologist)
Dr. Olivier (Oncologist - St.James)
Professor/Dr. Gerard Hutchinson (Pyschiatry)
Thank you For Reading and Please find it in your heart to donate Any amount so I can get relief in my health and my family life.
If you need Proof of Doctor references I will show you if needed but I have to move quickly. Half the year has gone and nothing has shed light and I have Not smiled or gone out, maybe 3 times to the bank since end of February 2023.
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