IMPORTANT NOTICE:
YOUR CARD STATEMENT WILL SHOW AS BLUE GURUZ INC.

UPDATE 22 (click link)

PURPOSE
The IBDhealthyHOME project began with the intention to support persons living with inherited blood disorders (IBD) minimise recurring issues and create a better quality of life. #DailyChallenge

These are the 5 PILLARs used to achieve this:
  • SELFcare
  • TRAIT Testing
  • GiveBLOOD
  • OPTIMALcare
  • FAMILYintegration
Community Connector kw young, started this volunteer effort in 2014 after joining local NGO, the Society for Inherited & Severe Blood Disorders (SISBD). In 2017 realtime conversation & feedback features for users was added via ADVOCACY for LIFEforum on what'sApp. The volunteer effort attracted a small team over the years, evolved into The IBDhealthyHOME project & includes the advocacy forum.

EVENTS
Community Walks were started with the 1st one held in 2020, this is the promo page:

the FUND
This fund was started to underwrite participation in the Positive Leadership course hosted by The United Nations University for Peace (UPEACE). The Certificate course was completed in March 2021 (last year).

Next STEP
Short term goal:
  • Expand the community outreach & support effort
  • Activate the SELFcare model
  • Implement key performance indicators (KPI)
  • Initiate Rapid Testing of Sickle Cell Trait & Disease
Give now to help the #IBDhealthyHOME project reach its goal
  • Nicole Melville-Hoyte
    Nicole Melville-Hoyte donated $338

    happy to support project SC (sickle cell) screening efforts in T&T

  • Glendora Barrow
    Glendora Barrow donated $169

    keep supporting • serving the IBD tribe

  • MISTY • CathyAnn
    MISTY • CathyAnn donated $101

    keep supporting HEALTHY homes

  • IBDhH
    IBDhH donated $135

    keep IBD support going

  • Ann James
    Ann James donated $108

    Keep supporting those living with IBDs

  • Delnora Rice
    Delnora Rice donated $506
  • Joy Waldron
    Joy Waldron donated $101

    keep up the support of IBD families project TT

  • Jennifer Young
    Jennifer Young donated $608

    SUCCESS with IBD family support & empowerment

  • Janelle Alexander
    Janelle Alexander donated $216

    CONGRATs on completed study. SUCCESS with project supporting the community of persons living with IBDs

  • Jill Joyles & GREYfleet
    Jill Joyles & GREYfleet donated $101

    SUCCESS with IBD support project TT

  • as @3rd Quarter 2021. The following support was provided by the IBDhH project:
    • FAMILY REFERRals
    1 Family with twin boys with SCD, one had 2 strokes
    2 Mother & 4 children. 1 teen Male, 18yrs, has SCD ss
    3 Female with SC Trait issues at work
    4 Family: paralysed mom, hospitalised, suicidal, passed 3mth after
    5 Dad with son with SC, difficult interaction
    6 Employer to have male employee make contact as they're ill often

    • CONNECTED
    Facilitated earlier operation date
    Connected as new author to SC focus buyer
    Connected tribe to MENTALcare support
    Connected tribe to PAINcare support

    DONORdrive for BLOOD
    • 18 DONORs
    • 7 Accepted
    2 pints of blood were requested & sourced for an IBD member after the Drive

    TESTing
    • 2 Sets of Sickle Cell Scan Test Training was completed for 7 persons by Medical Marketers Ltd.
    • The Goal is to test 100 people by end 2021
    • 4 Kits were Gifted by Medical Marketers to SISBD
    • 4 Families asked for testing, one family done thus far
    • support ms Terri Phillip to test in Moruga community

    EVENTs
    WALK
    • 12 June: did a hill walk to support a Drive for BLOOD from Barataria to POSGH in Trinidad & met a fruit vendor with family member living with SCD

    CHATs
    • ULCERheal weekly
    • FAMILY monthly
    • PAIN
    • MENTAL

    FORA attended to learn from the Global SCD Tribe
    • Sickle Cell Community Consortium
    https://www.sicklecellconvention.org/
    • Australia Sickle Cell Federation & African affiliates: https://www.aussicklecelladvocacy.org/
    • European Sickle Cell Federation
    https://escfederation.eu/european-sickle-cell-disease-summit
    • Sickle Cell Disease Association America
    https://web.cvent.com/event/a92fd34b-6257-4ccd-af57-ff0ccdf8ad52/summary

Education

Positive Leadership Study in support of IBD communityEducation

by kyle young
Created Oct 07, 2020 | Barataria & Bon Accord
$7,290 raised of $9,000 goal 81%
  • 27 Donations
  • No deadline
  • 0 Likes

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