IMPORTANT NOTICE:
YOUR CARD STATEMENT WILL SHOW AS BLUE GURUZ INC.

UPDATE 22 (click link)

PURPOSE
The IBDhealthyHOME project began with the intention to support persons living with inherited blood disorders (IBD) minimise recurring issues and create a better quality of life. #DailyChallenge

These are the 5 PILLARs used to achieve this:

SELFcare
TRAIT Testing
GiveBLOOD
OPTIMALcare
FAMILYintegration

Community Connector kw young, started this volunteer effort in 2014 after joining local NGO, the Society for Inherited & Severe Blood Disorders (SISBD). In 2017 realtime conversation & feedback features for users was added via ADVOCACY for LIFEforum on what'sApp. The volunteer effort attracted a small team over the years, evolved into The IBDhealthyHOME project & includes the advocacy forum.

EVENTS
Community Walks were started with the 1st one held in 2020, this is the promo page:

the FUND
This fund was started to underwrite participation in the Positive Leadership course hosted by The United Nations University for Peace (UPEACE). The Certificate course was completed in March 2021 (last year).

Next STEP
Short term goal:

Expand the community outreach & support effort
Activate the SELFcare model
Implement key performance indicators (KPI)
Initiate Rapid Testing of Sickle Cell Trait & Disease

Give now to help the #IBDhealthyHOME project reach its goal

Nicole Melville-Hoyte donated $338

happy to support project SC (sickle cell) screening efforts in T&T
Glendora Barrow donated $169

keep supporting • serving the IBD tribe
MISTY • CathyAnn donated $101

keep supporting HEALTHY homes
IBDhH donated $135

keep IBD support going
Ann James donated $108

Keep supporting those living with IBDs
Delnora Rice donated $506
Joy Waldron donated $101

keep up the support of IBD families project TT
Jennifer Young donated $608

SUCCESS with IBD family support & empowerment
Janelle Alexander donated $216

CONGRATs on completed study. SUCCESS with project supporting the community of persons living with IBDs
Jill Joyles & GREYfleet donated $101

SUCCESS with IBD support project TT

as @3rd Quarter 2021. The following support was provided by the IBDhH project:
• FAMILY REFERRals
1 Family with twin boys with SCD, one had 2 strokes
2 Mother & 4 children. 1 teen Male, 18yrs, has SCD ss
3 Female with SC Trait issues at work
4 Family: paralysed mom, hospitalised, suicidal, passed 3mth after
5 Dad with son with SC, difficult interaction
6 Employer to have male employee make contact as they're ill often

• CONNECTED
Facilitated earlier operation date
Connected as new author to SC focus buyer
Connected tribe to MENTALcare support
Connected tribe to PAINcare support

DONORdrive for BLOOD
• 18 DONORs
• 7 Accepted
2 pints of blood were requested & sourced for an IBD member after the Drive

TESTing
• 2 Sets of Sickle Cell Scan Test Training was completed for 7 persons by Medical Marketers Ltd.
• The Goal is to test 100 people by end 2021
• 4 Kits were Gifted by Medical Marketers to SISBD
• 4 Families asked for testing, one family done thus far
• support ms Terri Phillip to test in Moruga community

EVENTs
WALK
• 12 June: did a hill walk to support a Drive for BLOOD from Barataria to POSGH in Trinidad & met a fruit vendor with family member living with SCD

CHATs
• ULCERheal weekly
• FAMILY monthly
• PAIN
• MENTAL

FORA attended to learn from the Global SCD Tribe
• Sickle Cell Community Consortium
https://www.sicklecellconvention.org/
• Australia Sickle Cell Federation & African affiliates: https://www.aussicklecelladvocacy.org/
• European Sickle Cell Federation
https://escfederation.eu/european-sickle-cell-disease-summit
• Sickle Cell Disease Association America
https://web.cvent.com/event/a92fd34b-6257-4ccd-af57-ff0ccdf8ad52/summary