Help Little Che-ly Get the Care
She Desperately Needs

Che-ly is a beautiful, bright-eyed 4-year-old from Port-of-Spain, Trinidad whose smile lights up any room. For the first year and a half of her life, Che-ly hit all her developmental milestones. She was curious, playful, and full of life- just like any child her age. But just after 18 months, her parents began to notice heartbreaking changes. Che-ly slowly began to lose the abilities she had worked so hard to gain. Words stopped coming. Her little legs stopped carrying her. Her hands, once used to explore the world, began to move repetitively without purpose.
After months of medical visits and confusion, doctors initially suspected autism. But as more symptoms emerged, the focus shifted to something far more rare and devastating- Rett Syndrome.

Rett Syndrome is a rare genetic neurological disorder that primarily affects girls. It leads to severe impairments in almost every aspect of life- speech, mobility, muscle control, and sometimes even breathing and heart function. It is not inherited, and most cases occur by random mutation.

Che-ly is now non-verbal and cannot walk. She depends completely on her family for every aspect of daily life. Her journey has already led her to countless referrals: Neurology, Gastroenterology, Cardiology, Physiotherapy, Orthopaedics, Ophthalmology, Dietetics, Audiology- and the list continues. She has an MRI brain scan scheduled for June 2026 at the Eric Williams Medical Sciences Complex and is awaiting an EEG. These appointments, though crucial, are slow-moving through the public system. But the one test that can confirm what doctors now strongly suspect-the genetic test for Rett Syndrome- is not available in the public health system. It must be done privately and sent abroad, and the cost is beyond what her humble family can afford. This test is critical not only for a confirmed diagnosis, but also for access to early intervention, international support networks, clinical trials, and tailored treatments that can help improve Che-ly’s quality of life.

Her parents are doing all they can, but they cannot do this alone. That’s why we’re asking you- kind strangers, friends, and community members- to open your hearts and help us raise the funds needed for her genetic testing and medical care.

Every dollar counts. Every share helps.

Help us give Che-ly the fighting chance she deserves. Help her family find the answers they so desperately need. Let’s give this little warrior a voice, a diagnosis, and a path forward.

Donate. Share. Support.
For Che-ly, with love