Hi, I am Sherisse Alexander, a 27yr old young lady from Trinidad and Tobago. For approximately 7yrs now I have been living with Plexiform Neurofibroma which a rare and incurable nerve disorder.
My nerves are forming lumps or tumors which cause a lot of pain and discomfort on a daily basis. Over past approximately 7yrs I have tried several different types of treatment: acupuncture, massage therapy, countless painkillers and nerve tablets, herbal medicine, exercising, reflexology and dieting. However, my health has continued to deteriorate.
At the age of 27 I am drastically underweight (70 pounds currently). I experience insomnia, great difficulty standing and walking and now have to use a cane for assistance. I have disc bulging and inflammation in my lumbar spine. I can no longer straighten my left knee due to lumps in that region and I am almost always in some sort of pain or discomfort.
I recently had to stop working because a lump has developed on the instep of my left foot which makes it even more difficult to move around and stand. Because we have exhausted our pain management options, my doctors are now recommending surgery as the next step.
My neurologist has suggested that such a procedure be done abroad since local facilities do not have the right equipment to continuously monitor the nerves during the excision of the tumors.
My family and I have been trying to raise funds through different fundraisers, however, COVID-19 has hampered this process. In previous years my family and I have handled all of my medical bills independently however, it has come to a point where we require more help.
The ballpark figure provided to me by John's Hopkins is 200k to 500k USD. This does not include airfare, accommodation and other expenses.
I would greatly appreciate any form of assistance given. Thanks in advance and God bless you!
Donations can also be made to either of the following bank accounts which are under the name Sherisse Alexander:
Unit Trust Corporation, Account #: 6139894-002
RBC, Account #: 110000003659335
Stachen donated $1,404
As someone who suffer with a neurological pain for more than half my life (started at Convent San Fernando), only to figure out it for myself that it was fibromyalgia through self advocacy and one doctor who actually cared, I can relate.
Anonymous donated $203
April Tonya donated $317
Ricardo Gonzales donated $203
Arissa Devries donated $68
Joe’s Palette donated $675
I may not reach out or chat often because I am a very private person, but I pay attention to your post and I pray for you and I admire you so much. God bless you and I am rooting for you .
April Ransome donated $338
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